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The Validity and Reliability of Characterizing Epilepsy Based on an External Review of Medical Records
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Bong Su Kang, Hae-Kwan Cheong, Ki-Young Jung, Sang Hyeon Jang, Jae Kook Yoo, Dong Wook Kim, Soo-Eun Chung, Seo-Young Lee
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Epidemiol Health. 2013;35:e2013006. Published online August 23, 2013
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DOI: https://doi.org/10.4178/epih/e2013006
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Abstract
<sec><title>OBJECTIVES</title><p>Our goal is to validate diagnosing and characterizing epilepsy based on a medical record survey by external reviewers.</p></sec><sec><title>METHODS</title><p>We reviewed medical records from 80 patients who received antiepileptic drugs in 2009 at two hospitals. The study consisted of two steps; data abstraction by certified health record administrators and then verification by the investigators. The gold standard was the results of the survey performed by the epileptologists from their own hospital.</p></sec><sec><title>RESULTS</title><p>The specificity was more than 90.0% for diagnosis and activity, and for new-onset seizures. The sensitivity was 97.0% or more for diagnosis and activity and 66.7-75.0% for new-onset epilepsy. This method accurately classified epileptic syndromes in 90.2-92.9% of patients, causes in 85.4-92.7%, and age of onset in 78.0-81.0%. Kappa statistics for inter-rater reliability and test-retest reliability ranged from 0.641-0.975, which means substantial to near-perfect agreement in all items.</p></sec><sec><title>CONCLUSIONS</title><p>Our data suggest that epilepsy can be well identified by external review of medical records. This method may be useful as a basis for large-scale epidemiological research.</p></sec>
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Summary
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Citations
Citations to this article as recorded by  - The association between early childhood onset epilepsy and attention-deficit hyperactivity disorder (ADHD) in 3237 children and adolescents with Autism Spectrum Disorder (ASD): a historical longitudinal cohort data linkage study
Lauren Carson, Valeria Parlatini, Tara Safa, Benjamin Baig, Hitesh Shetty, Jacqueline Phillips-Owen, Vibhore Prasad, Johnny Downs
European Child & Adolescent Psychiatry.2023; 32(11): 2129. CrossRef - Risk of COVID-19 Infection and of Severe Complications Among People With Epilepsy
Joonsang Yoo, Jee Hyun Kim, Jimin Jeon, Jinkwon Kim, Tae-Jin Song
Neurology.2022;[Epub] CrossRef - The bumpy road to achieve reliability of clinical profile characteristics in psychosis and related disorders
Steven Berendsen, Mirjam J. van Tricht, Amy Tedja, Thijs J. Burger, Mariken B. de Koning, Lieuwe de Haan
International Journal of Methods in Psychiatric Research.2021;[Epub] CrossRef - Staging and profiling for schizophrenia spectrum disorders: Inter-rater reliability after a short training course
Steven Berendsen, Jasper W. van der Paardt, Henricus L. Van, Marion van Bruggen, Hans Nusselder, Margje Jalink, Olav R. de Peuter, Jaap Peen, Mirjam J. van Tricht, Lieuwe de Haan
Progress in Neuro-Psychopharmacology and Biological Psychiatry.2020; 99: 109856. CrossRef - The new definition and classification of seizures and epilepsy
Jessica J. Falco-Walter, Ingrid E. Scheffer, Robert S. Fisher
Epilepsy Research.2018; 139: 73. CrossRef - Presentation and management of community-onset vs hospital-onset first seizures
Emma Foster, Sarah Holper, Zhibin Chen, Patrick Kwan
Neurology Clinical Practice.2018; 8(5): 421. CrossRef - Estimating the Prevalence of Treated Epilepsy Using Administrative Health Data and Its Validity: ESSENCE Study
Seo-Young Lee, Soo-Eun Chung, Dong Wook Kim, So-Hee Eun, Hoon Chul Kang, Yong Won Cho, Sang Do Yi, Heung Dong Kim, Ki-Young Jung, Hae-Kwan Cheong
Journal of Clinical Neurology.2016; 12(4): 434. CrossRef - Early Antiretroviral Therapy Is Protective Against Epilepsy in Children With Human Immunodeficiency Virus Infection in Botswana
David Bearden, Andrew P. Steenhoff, Dennis J. Dlugos, Dennis Kolson, Parth Mehta, Sudha Kessler, Elizabeth Lowenthal, Baphaleng Monokwane, Gabriel Anabwani, Gregory P. Bisson
JAIDS Journal of Acquired Immune Deficiency Syndromes.2015; 69(2): 193. CrossRef - Clinical characteristics of patients with treated epilepsy in Korea: A nationwide epidemiologic study
Dong Wook Kim, Seo‐Young Lee, Soo‐Eun Chung, Hae‐Kwan Cheong, Ki‐Young Jung
Epilepsia.2014; 55(1): 67. CrossRef
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Burden of Disease of Multiple Sclerosis in Korea
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Soo-Eun Chung, Hae-Kwan Cheong, Jae-Hyun Park, Ho Jin Kim
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Epidemiol Health. 2012;34:e2012008. Published online November 30, 2012
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DOI: https://doi.org/10.4178/epih/e2012008
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25,322
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157
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20
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Abstract
<sec><title>OBJECTIVES</title><p>Multiple sclerosis (MS) is an inflammatory demyelinating disease of the central nervous system. There are few reports on the burden of disease of MS, worldwide. The authors aim to estimate burden of disease and estimate the epidemiologic indexes of MS in Korea using available epidemiologic data.</p></sec><sec><title>METHODS</title><p>Epidemiologic indexes were computed using DISMOD II software based on prevalence from nationwide survey, incidence estimated from extrapolation, mortality from National Statistics Office, and duration of disease from literature as input indexes. We calculated disability-adjusted life year (DALY) as a measure of premature mortality and disability, equivalent to years of healthy life lost due to a given condition.</p></sec><sec><title>RESULTS</title><p>The incidence of MS in Korea was 0.1 per 100,000, higher in female than in male. The highest incidence was estimated in the age group between 35 and 44 years in male and age group between 25 and 29 years in female. Total burden of disease of MS was 1,394 DALY, comprised of 292 (21%) years of life lost and 1,101 (79%) years lived with disability. The mean age at onset of MS was 33 years old in men and 32 years old in female. Estimated duration of disease was 35 years in men and 40 years in female. Most of the DALY of MS occurred in the adult population between 25 and 54 years of age.</p></sec><sec><title>CONCLUSION</title><p>Although MS is a rare disease in Korea, most of the DALY arises from young people, which results in a major financial burden on the patient, family, health system and society.</p></sec>
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Summary
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Citations
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Claudia Cruz Oliveira, Periklis Charalampous, Julien Delaye, Diana Alecsandra Grad, Pavel Kolkhir, Enkeleint A. Mechili, Brigid Unim, Brecht Devleesschauwer, Juanita A. Haagsma
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